One of our biggest fears, as parents, was seeing our children hurting and not being able to do anything about it. For two years of our daughters short four year life we lived our fear. We watched our daughter go from a fun loving little girl to a lethargic couch potato. It was a long hard two years and for those of you that did not get a chance to follow our journey it started with the stories I shared below.
We were challenged as parents daily trying to care for a child, whom by the way seemed impossible to ease. She was in so much pain that there were days she could not move. After Surgery we had a great recovery, for the first two weeks! Then we were challenged again by a scary amount of immense bleeding in her throat, nose and ear. It was horrifying and I am sorry for the graphic image, but this was something I feel you need to see to really understand.
After a couple weeks she seemed like she was getting better, but then to our surprise, our baby was miserable again! She developed a nasty infection from the amount of cauterizing they had to do. The doctor went ahead and prescribed her antibiotics, and we were back home in bed for the fourth week in a row! She was becoming very stubborn and she was missing so much school it was driving her crazy! It was hard, but we had to keep on our path to better, pain-free days.
We are now just waiting for our daughter to repeat the sleep study, and we hope that through the night everything goes well! We hope to wake to the technician saying that she is cured and she no longer has sleep apnea. Until our journey I never really thought twice about sleep apnea being a serious condition, but now I have a much better understanding it! I urge parents to look into sleep apnea and learn more about it!